Short Break Stories

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Over the last year we have been running a programme of short breaks (residential and day events) for carers, and people being cared for, from the Gypsy/Traveller community living in Perth & Kinross, Lothian and Argyll.

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A 5-day summer camp for 45 young people aged 8 – 25 years old, living in a family affected by Huntington’s disease.

The camp included a range of daytime and evening activities as well as one-to-one and group sessions with Scottish Huntington’s Association Specialist Youth Advisors, on the issues surrounding Huntington’s disease and being a young carer.

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We provided a 2 week Summer Club, including transport and intensive staffing, for 17 children with complex support needs.

One tailored week for older and one for younger pupils. An activity and play-based club for children unable to access community run schemes due to their high level care needs.

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We ran a music and asthma management project in Renfrewshire for young carers using wind instruments as a tool for asthma self management. The project focussed on making learning about asthma self-management through playing a wind instrument fun.

Project outcomes included improvements in both symptom control and in asthma self-management and afforded the participants the opportunity to develop better breathing and asthma control through the playing of wind instruments. We achieved this by providing trained support in asthma management, quality musical tuition and developing and encouraging peer support mechanisms.

The project also met the objectives of the Scottish Government Young Carers Strategy for Scotland 2010 – 2015 especially in regard to: the right to have a healthy life, to spend time with friends, to enjoy opportunities for leisure, relaxation and play, and to an education, in this case music education, which is often denied to young people with asthma.

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Scotland Family Camp 2015

We ran a weekend Family Camp for families of children with serious and life limiting illnesses and disabilities.

13 families attended our camp, comprising 45 individual campers, made up of the ill child(ren), siblings and parents and / or carers. The campers came from across Scotland to attend camp which took place at Tulliallan castle in Fife from 15th to 17th May 2015.

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Social & Emotional Support to Deaf Children and their Families

West Scotland Deaf Children’s Society provides social and emotional support to deaf children and their families.

Better breaks funding enabled us to offer many opportunities for our young people to meet and mix with an age appropriate peer group at our Saturday Sign Activity Club, a youth group and in partnership with St Roch’s Secondary School an after school club.

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Renfrewshire Carers Centre facilitated a Respite Voucher Scheme for Carers.  This was based on an assessment of needs to purchase suitable Respite from Carer Inspectorate Providers who had agreed to be part of the Respite Voucher Scheme.

This provided additional flexible respite services that enabled Carers to directly access personalised respite most suitable to their family needs.

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We provided grants directly to carers who care for a child or adult with profound and multiple learning disabilities, and live in Scotland.

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We provided grants directly to carers who care for a child who has Down’s Syndrome and who live with them.

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We provided grants directly to carers who care for a child or adult with learning disabilities.

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"As a family we were at breaking point...this break brought us all closer together and enabled us to have fun as a family and enjoy different surroundings. I can't thank you enough...for making this happen for us."

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